Comments on: “The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009 http://epatientdave.com/2009/12/29/the-quantified-patient-my-talk-at-quantified-self-showtell-december-2009/ The Voice of Patient Engagement Wed, 08 Sep 2010 04:28:34 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: e-Patient Dave http://epatientdave.com/2009/12/29/the-quantified-patient-my-talk-at-quantified-self-showtell-december-2009/comment-page-1/#comment-133 e-Patient Dave Wed, 10 Mar 2010 04:16:15 +0000 http://epatientdave.com/?p=455#comment-133 Of course - pharma companies, like any other company, are smart to keep their customers involved. They just need to be keenly aware of their well-earned reputation problems for corrupt disinformation, and be aware that e-patients are no fools - if pharma tries to co-opt the e-patient concept and (for instance) not fully disclose the downside of their products, they'll find themselves in an even deeper hole than in the past, except this time with a more empowered distrustful watchdog than ever. :-) For instance, I'm the first to say that high dosage Interleukin-2 saved my life. I also point out that it usually doesn't work, and the side effects are "often severe and rarely fatal," as the FDA requires the company to say. That's why when I spoke at my first pharma marketing conference in October, my talk was titled "Engage Authentically." (Video of that speech is on <a href="http://epatientdave.com/speaking/" rel="nofollow">my Speaking page</a>.) Of course – pharma companies, like any other company, are smart to keep their customers involved. They just need to be keenly aware of their well-earned reputation problems for corrupt disinformation, and be aware that e-patients are no fools – if pharma tries to co-opt the e-patient concept and (for instance) not fully disclose the downside of their products, they’ll find themselves in an even deeper hole than in the past, except this time with a more empowered distrustful watchdog than ever. :-)

For instance, I’m the first to say that high dosage Interleukin-2 saved my life. I also point out that it usually doesn’t work, and the side effects are “often severe and rarely fatal,” as the FDA requires the company to say.

That’s why when I spoke at my first pharma marketing conference in October, my talk was titled “Engage Authentically.” (Video of that speech is on my Speaking page.)

]]> By: Stephanie http://epatientdave.com/2009/12/29/the-quantified-patient-my-talk-at-quantified-self-showtell-december-2009/comment-page-1/#comment-131 Stephanie Tue, 09 Mar 2010 15:50:46 +0000 http://epatientdave.com/?p=455#comment-131 This sounds like a great new way for pharma companies to keep their customers involved as well as help educate them from home. -Steph Follow me @L2_Pharma This sounds like a great new way for pharma companies to keep their customers involved as well as help educate them from home.

-Steph
Follow me @L2_Pharma

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