- Here are links to content discussed in the e-Patient Boot Camp Monday, and my keynote and session Tuesday. Thanks to the Florida Health Care Coalition’s board for supporting the boot camp – I look forward to following up with participants!
- Society for Participatory Medicine, its journal, its blog e-patients.net
- National Business Group on Health’s Finding trustworthy health information on the internet
- My viral TEDx video “Let Patients Help” (including “the e-Patient Rap” written by Keith Boone)
- RA Warrior – Kelly Young’s RA patient community
- ACOR – great example of a patient community
- CaringBridge – create your own support “blog” without being a blogger
- e-Patients White Paper – check the Seven Preliminary Conclusions – in Chapter 2
- Ferguson Report – e-Patients as Medical Researchers
- Health Leaders media & magazine
- Peer-to-Peer Healthcare Pew Internet – Independent Research
- Seattle Mama Doc – Wendy Sue Swenson
- OB/GYN on Twitter @MacObGyn (Facebook too)
- Visible Body – to understand anatomy
- Open Notes project by the RWJ Foundation
- Hugo Campos – Give me my data at TEDx Cambridge
- Markle Foundation Download Health Data capability – Blue Button (also BlueButton.org)
- Regina Holliday‘s blog (“medical mural advocacy project”)
- Dartmouth Atlas of Health – unwarranted practice variation
- Gartner Research Methodology Hype Cycle
- The PAM Patient Activation Measure
- Medication help GlowCaps
- Patient speakers bureau SpeakerLink.org
Mr. DeBronkart,
Thank you so much for taking time to visit with the Florida Health Care Coalition. I was fortunate to attend your boot camp and listen to your presentation the next day.
After listening to your speech I realized that as “patients” we need to become more engaged in our own health care. During our upcoming open enrollment presentations I will make sure to spread the engagement message and provide them with tools that we make available to our employees to become better engaged in their health.
Thanks,
Jim – Jupiter, Florida