Comments on: Books

By: e-Patient Dave

e-Patient Dave — Thu, 24 Nov 2011 14:13:54 +0000

It’s fixed, Shelley. Thanks for speaking up!

By: e-Patient Dave

e-Patient Dave — Thu, 24 Nov 2011 02:54:19 +0000

Shelley, I feel like an idiot – I KNOW there used to be an Amazon link on this page, but I don’t see it now! Here it is:
http://www.amazon.com/Laugh-Sing-Eat-Like-Pig/dp/0981650430

I’ll have to fix that when I’m not online via my phone.

By: Shelley the friend

Shelley the friend — Thu, 24 Nov 2011 01:59:58 +0000

How can I purchase your book?

By: Shelley the friend

Shelley the friend — Thu, 24 Nov 2011 01:58:40 +0000

Dave. Is there a place on your website here I can order your book? Shelley

By: e-Patient Dave

e-Patient Dave — Fri, 22 Jul 2011 01:51:05 +0000

Sorry for the delay, Caren. And sorry to hear about your nephew.

The best advice I can offer, which may not be much, is to try to hunt down a patient community for Hodgkins and see if they know of anything. It will take some effort on your part. Start with the list at http://www.epatientdave.com/communities and if you find any success please let us know.

By: Caren

Caren — Wed, 20 Jul 2011 19:21:41 +0000

Dave,

My nephew has resistent chemo Stage IV Hodgkins

He is 31 years old with a wife, one year old and a two month old

He is getting ready to have stem cell procedure

How can I best help him

He lives to far to be to do to hands on

By: e-Patient Dave

e-Patient Dave — Mon, 11 Apr 2011 05:49:37 +0000

Well hi, Marlene! How nice of you to say that!

The point is that I’m not at all the first – many many have gone before me in taking matters into their own hands. This is quite a movement now, and since a thousand people a day in the US find out they have cancer, the Society for Participatory Medicine is working to spread the word on one simple concept: Let Patients Help.

And that’s not to mention all the other diseases and conditions … and ordinary self-care!

By: marlene

marlene — Mon, 11 Apr 2011 03:08:06 +0000

I heard you speak on NPR segment that aired April 10, 2011. I have to say your story is nothing less than amazing and poignant. Please continue sharing your story.

By: Pamela Swingley

Pamela Swingley — Fri, 11 Feb 2011 22:32:52 +0000

Hi Dave -
Read your book on the way home from the ePharma conference. ePatient Dave online is inspirational, but your story is even more powerful as a book. Having followed your e-Patient path for the last few years, I expected an excellent guide to empower, engage, equip, enable, and educate people facing cancer. What I didn’t count on was a renewed gratitude for the good health and amazing life I have now. Thank you.

By: e-Patient Dave

e-Patient Dave — Wed, 06 Oct 2010 16:30:00 +0000

Thanks, Roy! Would love to discuss specifics about it.

It’s an odd book, I hear: NOT written after the fact for dramatic impact – this is from the (overly wordy) real time journal as we dealt with the day-by-day, not knowing, “what’s next.” Long before we ever heard of e-patient. Just life unfolding.

You seem like a thoughty guy, and you can write – what do you think of a version where the cancer story was like Part 1, then Part 2: How e-Patients are Changing Healthcare, then Part 3 – the epilogue about the PHR story?

My gut said it would work better with the philosophical observations woven in, but now I’m not so sure.