Laugh, Sing and Eat Like a Pig is a story of illness in the age of “e,” citing many online resources. Here are links. If I’ve overlooked anything, email me.
- p. vi (Introduction): Beth Israel Deaconess Medical Center (my hospital)
- PatientSite (my hospital’s patient portal)
- p. xii (Introduction): The Health Care Blog
- p. 1: CaringBridge: home page
- My journal, from which the book was extracted
- To donate
- p. 2: Anatomy of an Illness as Perceived by the Patient (book)
- p. 6: ACOR (Association of Cancer Online Resources) ACOR.org
- to subscribe to ACOR Kidney Cancer group
- p. 12: e-Patient white paper (“E-Patients: How they can help heal healthcare”)
- PDF (977kb), editable wiki version, chapter summaries
- Seven Preliminary Conclusions (in the wiki version)
- e-patients.net
- p. 13: Suede (my jazz/blues singer sister who was such a tremendous support)
- Her website
- “Neverland” on YouTube
- p. 14: Other helpful sites: CarePages, CareFlash, LotsaHelpingHands
- p. 19: WETA series “Healthcare 360” about health IT (where I was taped 2/13/07)
- Entire pilot program (56:45), including opening segment with host Frank Sesno
- My segment (YouTube), part of a panel with AHRQ’s Carolyn Clancy (I looked kinda sick – y’think?)
- Dr. Regina Benjamin’s segment (YouTube), before she became Surgeon General (she describes twice losing her paper medical records in floods, and a third time in a fire. Then she went electronic!)
- “Mi Via” segment (YouTube) – how electronic medical record systems let migrant workers get consistent care from from different doctors as they travel.
- p. 22: Hugo walkers, folding canes, etc.
- p. 38: Anatomy of Hope (book)
- pg. 52: There’s No Place Like Hope (book)
- p. 80: Amy Tenderich’s DiabetesMine blog
- p. 99: Impact of exposure to war stress (Israeli study of MS patients) (PDF)
- p. 104: Sounds True (publisher of talks by Ram Dass etc)
- p. 138: The median isn’t the message (classic Stephen Jay Gould essay)
- p. 161: Wheelhouse singing “When I Live the World Behind” on YouTube
- p. 173: Randy Pausch’s Last Lecture
- p. 187: Information Quality Trainwrecks blog – IQTrainwrecks (the most accurate blog post about what happened in my PHR data transfer)
- p. 214: PCPCC (Patient Centered Primary Care Collaborative) – advocates for the patient-centered medical home
- p. 232: Jan Alexander’s resources for finding support groups
Suggestions for more links? Write me.
Just wanted to suggest one of my nonprofit organizations to add to your list, the Mesothelioma Group. Please check them out! (http://www.mesotheliomagroup.com)