Laugh, Sing and Eat Like a Pig is a story of illness in the age of “e,” citing many online resources. Here are links. If I’ve overlooked anything, email me.
- p. vi (Introduction): Beth Israel Deaconess Medical Center (my hospital)
- PatientSite (my hospital’s patient portal)
- p. xii (Introduction): The Health Care Blog
- p. 1: CaringBridge: home page
- My journal, from which the book was extracted
- To donate
- p. 2: Anatomy of an Illness as Perceived by the Patient (book)
- p. 6: ACOR (Association of Cancer Online Resources) ACOR.org
- to subscribe to ACOR Kidney Cancer group
- p. 12: e-Patient white paper (“E-Patients: How they can help heal healthcare”)
- PDF (977kb), editable wiki version, chapter summaries
- Seven Preliminary Conclusions (in the wiki version)
- e-patients.net
- p. 13: Suede (my jazz/blues singer sister who was such a tremendous support)
- Her website
- “Neverland” on YouTube
- p. 14: Other helpful sites: CarePages, CareFlash, LotsaHelpingHands
- p. 19: WETA series “Healthcare 360″ about health IT (where I was taped 2/13/07)
- Entire pilot program (56:45), including opening segment with host Frank Sesno
- My segment (YouTube), part of a panel with AHRQ’s Carolyn Clancy (I looked kinda sick – y’think?)
- Dr. Regina Benjamin’s segment (YouTube), before she became Surgeon General (she describes twice losing her paper medical records in floods, and a third time in a fire. Then she went electronic!)
- “Mi Via” segment (YouTube) – how electronic medical record systems let migrant workers get consistent care from from different doctors as they travel.
- p. 22: Hugo walkers, folding canes, etc.
- p. 38: Anatomy of Hope (book)
- pg. 52: There’s No Place Like Hope (book)
- p. 80: Amy Tenderich’s DiabetesMine blog
- p. 99: Impact of exposure to war stress (Israeli study of MS patients) (PDF)
- p. 104: Sounds True (publisher of talks by Ram Dass etc)
- p. 138: The median isn’t the message (classic Stephen Jay Gould essay)
- p. 161: Wheelhouse singing “When I Live the World Behind” on YouTube
- p. 173: Randy Pausch’s Last Lecture
- p. 187: Information Quality Trainwrecks blog – IQTrainwrecks (the most accurate blog post about what happened in my PHR data transfer)
- p. 214: PCPCC (Patient Centered Primary Care Collaborative) – advocates for the patient-centered medical home
- p. 232: Jan Alexander’s resources for finding support groups
Suggestions for more links? Write me.
