Comments on: For Providers http://epatientdave.com A Voice of Patient Engagement Thu, 17 May 2012 02:30:58 +0000 hourly 1 http://wordpress.org/?v=3.0.5 By: Gail Embt http://epatientdave.com/for-providers/comment-page-1/#comment-120221 Gail Embt Fri, 10 Feb 2012 18:56:45 +0000 http://epatientdave.com/?page_id=70#comment-120221 Hello, I only just now found this site and read your post. I don't know if what we do helps your cause but Kinergy Health offers Navigators who become part of the patient's online community. Their mission is to link the patient to trusted research, facilitate communication with their care team, and keep the patient from having to acquire the skills of a care manager. They are there to help the patient frame the questions, access the answers, prioritize actions and connect their care team. I'd be happy to chat if you thought this model might be of help. Hello,

I only just now found this site and read your post. I don’t know if what we do helps your cause but Kinergy Health offers Navigators who become part of the patient’s online community. Their mission is to link the patient to trusted research, facilitate communication with their care team, and keep the patient from having to acquire the skills of a care manager. They are there to help the patient frame the questions, access the answers, prioritize actions and connect their care team. I’d be happy to chat if you thought this model might be of help.

]]> By: Alexander Wilms http://epatientdave.com/for-providers/comment-page-1/#comment-76107 Alexander Wilms Tue, 06 Sep 2011 04:28:17 +0000 http://epatientdave.com/?page_id=70#comment-76107 Dear Dave, I am currently working on a business model for a joint patient record system where physicians and patients contribute data into. One of the many issues of such a model is that doctors don't have an incentive to share the data they created, even worse, they may deliver evidence to patients who are going to sue them. I really support the idea of empowered patients, but many physicians will see them as professional threat. Of course there will be physicians who support the idea and collaborate with patients, but they will probably stay a minority. So what can we give physicians in return for their data? Alex Dear Dave,
I am currently working on a business model for a joint patient record system where physicians and patients contribute data into. One of the many issues of such a model is that doctors don’t have an incentive to share the data they created, even worse, they may deliver evidence to patients who are going to sue them. I really support the idea of empowered patients, but many physicians will see them as professional threat. Of course there will be physicians who support the idea and collaborate with patients, but they will probably stay a minority. So what can we give physicians in return for their data?
Alex

]]> By: e-Patient Dave http://epatientdave.com/for-providers/comment-page-1/#comment-49047 e-Patient Dave Mon, 23 May 2011 13:38:06 +0000 http://epatientdave.com/?page_id=70#comment-49047 Dave, over the weekend I posted on e-patients.net about a new poster that was shown last week at the ICSI / IHI Colloquium. <a href="http://e-patients.net/archives/2011/05/safety-net-populations-do-benefit-from-online-phrs-poster-at-icsiihi-colloquium.html" rel="nofollow">Safety net populations do benefit from online PHRs.</a> Included are the poster (PDF) and a short video with the poster's author. I debated whether to post it here or there (the Society's blog) and decided it's germane to the broader participatory medicine audience. Dave, over the weekend I posted on e-patients.net about a new poster that was shown last week at the ICSI / IHI Colloquium. Safety net populations do benefit from online PHRs.

Included are the poster (PDF) and a short video with the poster’s author.

I debated whether to post it here or there (the Society’s blog) and decided it’s germane to the broader participatory medicine audience.

]]> By: Dave Ekrem http://epatientdave.com/for-providers/comment-page-1/#comment-47729 Dave Ekrem Tue, 17 May 2011 13:35:43 +0000 http://epatientdave.com/?page_id=70#comment-47729 Hi Dave, I really enjoyed the talk you gave at Grand Rounds here at Mass General. I got a lot out of it, but I did have one big question at the end. When you got the initial diagnosis, you went into research mode in a big way, which is admirable. But I thought, "This guy's an MIT grad, he's obviously smart, and he's got top-notch research and communications skills." Same thing with the other presenter that day--smart, well educated, organized, great communicator. My question is this--what about folks who lack those advantages? Do you know if there are resources/recommendations for institutions that want to empower e-patients who might not be self-starters? I just ordered "Laugh, Sing, Eat Like a Pig." Might find the answers there. Thanks again for the talk! Dave Ekrem (opinions are my own, of course) Hi Dave,

I really enjoyed the talk you gave at Grand Rounds here at Mass General. I got a lot out of it, but I did have one big question at the end. When you got the initial diagnosis, you went into research mode in a big way, which is admirable. But I thought, “This guy’s an MIT grad, he’s obviously smart, and he’s got top-notch research and communications skills.” Same thing with the other presenter that day–smart, well educated, organized, great communicator.

My question is this–what about folks who lack those advantages? Do you know if there are resources/recommendations for institutions that want to empower e-patients who might not be self-starters? I just ordered “Laugh, Sing, Eat Like a Pig.” Might find the answers there. Thanks again for the talk!

Dave Ekrem (opinions are my own, of course)

]]> By: Caryn Isaacs http://epatientdave.com/for-providers/comment-page-1/#comment-12119 Caryn Isaacs Mon, 06 Dec 2010 22:56:41 +0000 http://epatientdave.com/?page_id=70#comment-12119 I give seminars to seniors about being a Patient Advocate. Thank you for bringing Patient Advocacy to the providers attention in such a compelling manner. I give seminars to seniors about being a Patient Advocate. Thank you for bringing Patient Advocacy to the providers attention in such a compelling manner.

]]> By: Christy Thompson http://epatientdave.com/for-providers/comment-page-1/#comment-6830 Christy Thompson Thu, 14 Oct 2010 14:28:49 +0000 http://epatientdave.com/?page_id=70#comment-6830 Thank you for sharing your story! I feel as though we are kindred spirits in our efforts to be our own best health care advocate. It saved my daughters life last year (you can read more about her at www.NeelysMiracle.com) Thank you for sharing your story! I feel as though we are kindred spirits in our efforts to be our own best health care advocate. It saved my daughters life last year (you can read more about her at http://www.NeelysMiracle.com)

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