Links for today’s Oracle Health Sciences Innovation Forum

I’m speaking today at Oracle’s Health Sciences Innovation Forum in San Mateo, California. They’re into big data and what it can do to create value, and as regular readers know, I love that idea. Heaven knows medicine can use all the “value help” it can get – and heaven knows most of medicine doesn’t think nearly enough about the value of data.

Here are links to the resources I’ll mention:

• Society for Participatory Medicine, its journal, its blog e-patients.net
• The TEDMED 20 Great Challenges for 2013. (“Role of the Patient” placed third of the 50 candidates)
• ACOR – great example of a patient community
• CaringBridge – create your own support “blog” without being a blogger
• e-Patients White Paper – check out the Seven Preliminary Conclusions in Chapter 2
• Health Leaders magazine
  • Patient of the Future article, Sept. 2009
  • 20 People Who Make Healthcare Better, Dec. 2009
• Oakland defibrillator patient Hugo Campos –
  • Give me my data at TEDx Cambridge, Nov 2011
  • Front page article in Monday’s San Francisco Chronicle
  • Front page article in San Jose Mercury news, Jan 2012

Also of interest – I may or may not mention it – to optimize consumer value for treatment of my new skin cancer, I published an RFP, specifying what I want from providers. Why? Like more and more consumers, I have high deductible insurance – $10,000 deductible – so I myself am calling the shots.  I’m getting the treatment tomorrow – I’ll be blogging the decision I made, as an outcome of the RFP process.