Search Results for: montori careful kind care

July 28, 2018 By e-Patient Dave Leave a Comment

“Why We Revolt”: podcast episode 5 – why we should call for careful and kind care

Episode 5 is live! “Why We Revolt” – the patient’s side of the call for better care, with Victor Montori

Special request: What would you like to hear about, on my podcast?

I start this episode by asking for your feedback. Most important, one friend wrote saying he’s not looking for lecture-length radio shows – he wants quick tips, answers to questions. How about you? Are you loving it? Telling friends about it? If not, I’m missing my mark – let me know via the Contact page!

And now, about this episode – [Read more…]

January 5, 2016 By e-Patient Dave 3 Comments

Careful and kind care, part 2: Slides & video from Maine Quality Counts

This blog post is formatted using a new method I’ve never tried before, with slides and video side by side. The video didn’t capture the slide images, but you should be able to watch the video and click the slides forward when it seems like a good time.

Email subscribers, if you can’t see the video or the slides, click the headline to come see them online.

This series of posts to start 2016 is motivated by a desire to help healthcare achieve its potential. I believe that’s not possible unless we’re clear about what the potential is and clear about the challenges and obstacles.

Before moving to additional subjects, today I want to go one step deeper on Dr. Victor Montori’s concept of care that is “careful and kind.” (See Saturday’s post, if you missed it.) I have three reasons to go deeper before moving on:
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January 2, 2016 By e-Patient Dave 7 Comments

A declaration of the future of caring: careful, kind, “minimally disruptive”

KER "Treatment That Fits" diagram — The basic idea of minimally disruptive medicine (from minimallydisruptivemedicine.org)

To start 2016, a vision.

In 450 events in 14 countries, I’ve heard a lot of thoughts about healthcare: its challenges, its possibilities, why change is hard, and who should do what to make things better. Easily one of the most inspiring voices I’ve heard is Victor Montori at the Mayo Clinic’s “KER Unit” (Knowledge and Encounter Research Unit). Here are two resources to briefly introduce you to his work; another will come later this week.

One of his fundamental principles is what he calls “minimally disruptive medicine.” While so many articles in magazines and journals complain about patient “compliance” (i.e. doing what the doctor dictated), the KER people are nearly obsessed by questions like “Will this work in the patient’s life??” and “Wait – is this what the patient really wants?” A great quick overview is on their home page.

In an email this morning Victor said:
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The “Power of the Patient” podcast

A grass roots podcast about getting the care you need for yourself and your family

When I was diagnosed as almost dead from Stage IV cancer, my doctor sent me to the internet to connect with other patients like me, while I waited for treatment. They told me, “You picked best year ever to get sick,” and they were right: medicine today saves more lives than ever. That’s why we have more old people than ever!

Yet at the same time, too often the system falls short. That gap is where you can make a difference, by learning what’s worth knowing, and knowing what’s worth doing. When it comes to your health and your care, knowledge really is power – and that’s what this podcast is for.

Listen and subscribe on these podcast systems:
iTunes Stitcher Google Play PodBean RSS

The best of global health conversations –
with a “what should I do?” patient point of view

After years of traveling to hundreds of events around the world as a cancer survivor lecturing about healthcare, I’ve seen and heard thousands of views, and developed a few opinions of my own. Now it’s time to reach out and share at the grass roots level. So in addition to speeches, articles, books and fellowships, I’m reaching out to the general public – the consumer, the health citizen – with a new message targeted not to health professionals but to the people in our neighborhoods, with a new podcast: The Power of the Patient.

Healthcare is saving more lives than ever – it’s the best year ever to get sick – yet sometimes the system drops the ball. That’s where you – the patient and family – can help healthcare achieve its potential by being informed, engaged, and empowered – an e-patient. Episode 1 introduces the series and begins teaching essential things every family should know.

Episodes

Episode 1: Introduction and my cancer story, and discovering I was an e-patient
- Introduction to the series: medicine is doing great things, but too often it falls short – in ways you can help prevent. That’s what this podcast will be about.
Episode 2: Patient Larry Fagan MD PhD on tricky diseases: understanding the diagnosis and treatment decisions
- This is an unusual choice for the first patient story, but ya gotta start somewhere. Larry Fagan trained as an MD and worked as a researcher at Stanford – as you’ll hear, he explains how doctors are trained to think … and if you can learn to do that, it can help you be a more potent patient when the going gets rough.
Episode 3: What Everyone Should Know About Getting the Best Care, with Dr. Danny Sands.
- My famous doctor, one of the pioneers of patient partnerships and the whole e-patient movement, shares what you should know about getting the best available care. Then we role-play the wrong and right ways for doctors to welcome – and encourage – the power of the patient.
Episode 4: “What will this cost?” Episode 4 of Power of the Patient, with Clear Health Costs
- Want better control over your health costs? Investigative journalism has finally come to healthcare, and it’s winning prizes bigtime. My guest Jeanne Pinder is a former New York Times editor whose company Clear Health Costs has just won the Edward R. Murrow award for investigative journalism!
Episode 5: “Why We Revolt”: podcast episode 5 – why we should call for careful and kind care
- In his book Why We Revolt Dr. Victor Montori says, “Healthcare has corrupted its mission: it has stopped caring, and I am not going along with it.” He says the system too often no longer delivers careful and kind care, and wants us all (patients and clinicians alike) to demand it.

Power of the Patient is hosted and produced by my friends at Touch-Point Media. I first met them through the Mayo Clinic Center for Social Media, where good things happen including useful connections! And that’s social.

December 15, 2017 By e-Patient Dave 4 Comments

Notes for NAM’s Action Collaborative on Clinician Well-Being and Resilience

Infographic from NAM with key statistics on clinician wellbeing

I’m participating today as a “consumer/patient” voice in a meeting on clinician burnout, part of a project of the National Academy of Medicine. I was going to be there in person but a bad and contagious coughing cold kept me home, so I’m watching and listening remotely.

Remote participants often don’t get as much chance to speak up, so I’m doing what empowered people do: find another way to get heard.:-)

Burnout is important to me, because I’m deeply grateful to the highly trained people who saved my life 11 years ago, and I want them to have a good life. But look at the statistics in the project’s infographic here. It drives me nuts (and makes me sad) that the doctors and nurses who put in all those years of training, and gained their years of experience, are so often unhappy with their working life.

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December 6, 2016 By e-Patient Dave 10 Comments

Taxonomy of Burden – potent visualization of patient experience of illness & treatment

Taxonomy of Burden diagram — Click to open downloadable high-resolution PDF in another window.

Response to this on social media has been very strong. Why?

At conferences people are always asking how to comprehend what policy people call “patient experience.” Too often they think it’s things like “Was the food good? Did we smile for you? Was parking easy?” This diagram may help change that.

Have you ever been given instructions by a clinician that are really hard for you to follow? Have you ever thought to yourself, “Don’t they know I have a life? And I have to take care of my sick mother, too, and my car broke down, and…?”

And then for many of us there are all the complications of managing multiple conditions.

Lots of people talk about the burden of a disease, but what about the burden of treatment – when the treatment itself makes life more difficult? How ironic, when the whole point of care was to make life better?

I first heard about this issue from the Mayo Clinic’s Victor Montori when we both spoke last January at Maine Quality Counts. (I blogged his slides and speech video: Careful and Kind Care for our Complex Patients.)