Let us start by reviewing our anthem: “Gimme My DaM Data – it’s all about me so it’s mine,” by the magnificent Ross Martin MD and his wife Kym, multi-cancer patient whose care has been affected by lack of access to her health data. “DaM” is Data About Me, Kym’s more-polite version of my cussing. Read on for why this is newly urgent.
Dear John: *I* want to download my records.
Dear Dr. Halamka,
I want to download all my data from my 14 years as a patient at Beth Israel Deaconess Medical Center. What button should I push?
In June you said on your blog (left, top) and on MedCity News that no patient has ever asked for that, but your tech support says you don’t have a way to do it (see red outline).
Tech Support said I should call Medical Records. I did, and they said they can’t deliver things electronically. So where is the link you say nobody has ever used?
[Read more…]
#OpenNotes mashup! 20th birthday of Seinfeld’s “Elaine’s a difficult patient” :)
“It was twenty years ago today / Sgt Pepper taught the band to play” … well, today’s the 20th birthday of Seinfeld episode #139, October 17, 1996. This was the famous segment where Elaine looked in her chart and found she’d been marked “Difficult.” What followed was hysterical, as she got lied to and ultimately recruited Kramer to impersonate a doctor (“Doctor Van Nostrum”) to get her records.
You see, when this episode aired, Elaine did not have the right to see her chart. The HIPAA law had been passed in August 1996 by the legislative branch, but the regulations giving her access rights had not been created yet by the executive branch.
Well, things have changed, and change can be good … and in a delicious twist, the OpenNotes people got me to impersonate Kramer impersonating a doctor, in a new video mashup. Enjoy.
Here’s a hashtag: #ElaineDifficult20.
Medicine is flipping. Join Eric Topol and me at MedCity ENGAGE to discuss
If you’re, frankly, a visionary who sees that the power structure in medicine is flipping, I urge you to come to La Jolla next month.
MedCity News, one of the best health IT publishers, is hosting its annual “ENGAGE” conference. The mighty Eric Topol is speaking the first morning, and I’m doing the closing keynote on day 2. (I call him mighty because that’s what I think about his vision. So sue me.:-)
Register with promotion code SpeakerReferral and get $500 off, so your cost is only $395. That’s a heck of a good price for this list of speakers – even better than the $300 early-bird discount shown above.
Here’s why this event is unusual: [Read more…]
Join us for #HCLDR Tweetchat “Emergence of e-Patients” Tuesday 8:30pm ET
If you’re a fan of healthcare improvement, or of the e-patient movement, or social movements in general, and if you know anything about tweetchats in general or the #HCLDR tweetchat in specific, mark your calendar for next Tuesday night, 8:30-9:30 ET. I’ll be that week’s guest, and it’s going to be wild and wooly and intentionally mind-bending.
In short, ten years ago the e-patient movement was getting born – well, it already existed, but it was beginning to get noticed, and with social movements getting noticed makes all the difference.
What’s this “emergence” thing?
Emergence is a scientific principle that I’ll say more about over the weekend. Click the photo above to go to the HCLDR blog post to learn more about it in this context. In short, ten years ago the e-patient movement was like individual birds, and emergence is when new behaviors emerge in flocks of something.
Things are changing. Please click and learn. We’ll have more to say afterward.
Welcome to the new site!
In recent speeches I’ve increasingly used my favorite line about not dying: “If you live long enough, things change!”
So it is with this website. As I said the other day, it started seven years ago. At first it was just a blog with a couple of extra pages added, supporting my growing business as a keynote speaker. The blog lived, fittingly, on the home page. But if you’ve just come here directly, look at the menu – this blog’s now on a page of its own.
Why? As I’ve said this year, my work is evolving. After 500 conferences and policy meetings I’m doing more authoring now, more work in academic medicine, more work advising and speaking for corporate clients, large and small. I still love speaking best (nothing’s more fun than a standing ovation), but after seven years it’s time for the blog to move off the home page, to make room for the three dedicated “rabbit holes” a visitor can jump down, one for each of the types of work I do: speaker, author, advisor.
So welcome! Look around, and leave feedback in comments. Here’s to new tomorrows!
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