e-Patient Dave

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March 14, 2014 By e-Patient Dave 3 Comments

Recent events and postings, March 14

Corrected Saturday afternoon: “Stanford” should have been “UCSF” (University of California, San Francisco)

Boy, is the pot starting to bubble. Word about participatory medicine is spreading, and there are signs that it’s starting to follow the trajectory of other cultural movements. News and posts elsewhere in the past week:

e-Patients.net: Surgeon: “Participatory Medicine encourages partnership between patient and provider”

There’s a stage in every movement where it starts to get discovered by people in the establishment who weren’t among the founders. And there’s another stage, when that person’s discovery spreads into mainstream media. That happened Thursday, in Richmond VA, when a cardiac surgeon wrote a piece with the title above, including this:

Today, there is a movement afoot — one that is welcomed by me and many of my colleagues. It’s a change that I hope will become the norm when it comes to the physician-patient relationship. It’s all about partnerships between patient and provider.

To hear a surgeon say that – one who just met us recently, at last fall’s Medicine X conference – is hot stuff. It’s especially important that none of the society’s founders were involved – the discussion now has a life of its own.

e-Patients.net: Words Matter – Let’s Reconsider the Term “e-Patient”

[Read more…]

Filed Under: Digests 3 Comments

March 11, 2014 By e-Patient Dave 64 Comments

How much should/could this pathology cost? (Skin cancer biopsies)

I’m going to START with three clarifications, because sometimes people don’t read footnotes. :-)  Read before proceeding.

  • I’m NOT saying there’s anything wrong here – don’t anyone assume that every time I blog, it’s a warpath. :)  I’m just asking a question. My guiding principle on medical treatments and costs is that people should know what their options are, so I’m presenting my situation and asking.
  • I’m also NOT asking for treatment advice – I’m only asking about costs and whether it sometimes makes sense to get pathology done elsewhere. (We’ve already discussed treatments and I’m satisfied.)
  • As I’ve said before, I’m NOT recommending that anyone else act as I choose to.

Also, regular readers know that as a former cancer patient in New Hampshire, my insurance options were limited, and I chose $10,000 deductible, so all of this will come out of my pocket. As I’ve blogged many times before, this turns out to be a nifty way to discover how the money actually flows in American healthcare, which is usually really hard to find out.
___________

Below is the pathology report from some biopsies I got in January. The bill is $416 list price; after the usual insurance discount, my balance due is $312.

My questions:
[Read more…]

Filed Under: cost cutting edition, decision making 64 Comments

March 10, 2014 By e-Patient Dave 5 Comments

e-Patient request: colon cancer communities

Regular readers know that I sometimes will post an e-patient request, and some of those answers go into my list of patient communities on this site. Here’s one I can’t believe I haven’t written up, because I know there are lots of them!  But that’s probably why nobody’s ever asked, here.

Colon cancer

An audience member from overseas writes saying that a relative has been suddenly diagnosed with colon cancer, with poor prognosis.  I went to my Communities page and found nothing. That’s crazy because I know there are lots of communities for colon-related conditions. (My page has several for Crohn’s and colitis, but not colon cancer.)  Who are you, out there??

My memory is notoriously bad so I apologize for not remembering you all. Off the top of my head I remember:

  • Colontown (“mayor” Erika Brown is on Facebook)
  • Colon Club’s message board
  • ____

Who else??  As always, answers will be recorded on the Communities page, for others to find. Thanks!

 

Filed Under: e-patient requests 5 Comments

February 27, 2014 By e-Patient Dave Leave a Comment

A Man of the Year in “Shapers & Influencers”? I’ll take it…

My H.I.T. Men of the Year awardMonday night at the gigantic (37,000 people) HIMSS conference in Orlando (Health Information Management Systems Society), Healthcare IT News presented its 5th annual “H.I.T. Men & Women of the Year” awards. I was one of the nine nominees in the “Shapers & Influencers” category, and I was thrilled to learn that I was one of the three winners! Announcement and photo here.

Even better, famed art activist Regina Holliday was another. So our Society for Participatory Medicine nearly swept the category. That’s a huge acknowledgement in a Society that still barely knows patients exist – not a single patient was invited to speak in the big hall.

My thanks to Healthcare IT News, and to emids, the company who founded the award.

Filed Under: Events, Uncategorized Leave a Comment

February 26, 2014 By e-Patient Dave Leave a Comment

Let Patients Help – now available in Spanish: “¡Dejad que los pacientes ayuden!”

513d+SE7-hL._I’m thrilled to announce that my book Let Patients Help is now available for sale, in paperback or Kindle, in Spanish!

The project was managed by Luis Fernandez Luque (@LuisLuque), longtime member of the Society for Participatory Medicine and organizer of my tour of the northeast part of Spain two years ago. This man sees the future and makes things happen.

  • Print edition, on Amazon’s CreateSpace self publishing site
  • Kindle edition, on Amazon

Please spread the word to the whole Spanish speaking world. ¡Dejad que los pacientes ayuden!

Thanks too to the other team members whose work made this possible:
Jaime Cubero Guerrero (Editor)
Miguel Tovar (Editor)
Elena Sainz (Editor)
Patrick Partridge (Translator)

 

Filed Under: books Leave a Comment

February 24, 2014 By e-Patient Dave Leave a Comment

“Patient Engagement in Health IT” is live – my first professional C.E. course

screen capture of course web page
Click to visit the course web page

After a year of work in partnership with the University of Minnesota School of Nursing, I’m thrilled to announce that my first commercial, professional continuing education course is live:

Patient Engagement
in Health Information

An online C.N.E. course
at the University of Minnesota
School of Nursing

Register here.

From the course web page:

Target Audience:
Healthcare team members interested in learning to plan for and implement supportive actions for patient engagement and activation through the use of health information technology (IT).

[Read more…]

Filed Under: Uncategorized Leave a Comment

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