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January 15, 2016 By e-Patient Dave 5 Comments

Patient Engagement and Empowerment: A Culture War Begins (lecture at MITRE)

A Culture War Begins - title slideI’m starting 2016 with a series of posts that lay out “the arriving future” of health and care. Previous entries:

  • A declaration of the future of caring: careful, kind, “minimally disruptive” (January 2)
  • The arriving future of tech in health(care): Lucien Engelen on LinkedIn (January 4)
  • Careful and kind care, part 2: Slides & video from Maine Quality Counts (January 5) (Already cross-posted on the Minimally Disruptive blog)
  • It’s time to adopt a good working definition of empowerment. (January 7)

Technological advances are making new things possible, and our deepening conception of what medicine is about (and how best to achieve care) are changing our thinking about the nature of the work. We are truly shifting from “the doctor knows everything that needs to be known” to patients as potentially capable partners.

This is real culture change. Predictably, the establishment fights back: some people don’t believe it, some just don’t like change (especially change in their work), and some don’t like what they perceive to be a challenge to their authority.

[Read more…]

Filed Under: Events 5 Comments

December 4, 2015 By e-Patient Dave Leave a Comment

“Let patients help reinvent radiology” (my first Periscoped speech)

Tuesday night in Chicago I gave a 28 minute talk for Philips customers at the huge (56,000 people) radiology conference, RSNA. The leading-edge social media guy at Philips, Noah Harpster (@PhilipsLiveFrom), broadcast it live using the free Periscope live-streaming app (owned by Twitter), and boom, here’s the archive. Unpolished, raw, live. Free.  (Email subscribers, if you can’t see the videos below, click here to view the post online.)

This is the first time I’ve spoken to radiologists. This talk has very little about my cancer story, and a lot about the impact on professionals of two things:

  • When assets digitize, things change fast
  • Information makes new things possible

I also pulled out some props – including a 3D printout I had done locally of my lungs (my bronchi and metastases). I told you that when things digitize, new stuff becomes possible.

[Read more…]

Filed Under: Events, Health data, Innovation, patient engagement, public speaking Leave a Comment

October 22, 2015 By e-Patient Dave 2 Comments

Speaking Nov. 10 at Sacramento Health 2.0 … join us!

Health2SacBEveryone in the “health 2.0” world knows that the Health 2.0 conference is the conference in the health 2.0 world. It’s where everybody has to be, if they want to be known in that high-powered innovator world. Proof got even deeper when, a couple of years ago, they shifted venue from downtown San Francisco to the belly of the beast: Silicon Valley.

Less well known is that Health 2.0 has a number of outlying communities, and one is in Sacramento, the state capital.  Next month I’ll be speaking there, at a free event open to the public.

Laura GoodIt’s 6:30 to 8:30 p.m. at Hacker Lab, 1715 I Street. Register here! And here’s the Health 2.0 Sacramento site. Tentative agenda:

6:30 – 7:15 Mingling and Munchies
7:15 Kickoff
7:30-8:15 e-Patient Dave (including time for Q&A)
8:15-8:30 Mingling

A special thanks to one of my earliest Twitter buddies, @GoodLaura – Laura Good – who, it happens, is a startup geek in that very area and involved with Health 2.0. My first private twitter messages with Laura were in 2009! (If you must know, it was about some typesetting arcana that were raising puzzles in Microsoft Word.) How sweet it is to cross paths IRL with long-time online peeps!

Filed Under: Events, Innovation 2 Comments

October 18, 2015 By e-Patient Dave 1 Comment

Uptown Funk comes to medical education: My first “lecture” to incoming students


View on YouTube

Lucien Engelen head shotRegular readers know that a large part of my becoming a global advocate has been the vision and influence of Lucien Engelen at Radboud University Medical Center (RUMC) in the town of Nijmegen, on The Netherlands’ eastern border. Way back in 2010 he announced that his upcoming  TEDx would be primarily about patients; the TED Talk I did there put my speaking career into a catapult; then he put his own money where his mouth is by launching the Patients Included badge#PatientsIncluded initiative, saying he would not attend any event where patients weren’t actively encouraged to participate; and he has continued to lead in thoughts and actions, every year since (including 3D-printing my lung metastases last year, below). Lucien is the standard, the exemplar of the “pay me with action” clause of my price policy.

My lung metastasesFor that reason, when he asked me this summer to participate in something even newer – something brand new – I immediately said yes. What was it? A three day event, “Inaugural Grand Rounds,” launching a completely redesigned curriculum at RUMC – redesigned with patients participating in the process. Yes, patients – people with no medical experience – except as “the ultimate stakeholders”; as patients, helping guide how we teach students.

[Read more…]

Filed Under: Best of 2015, Events, Innovation, Leadership, Medical Education, Speaker Academy 1 Comment

September 17, 2015 By e-Patient Dave Leave a Comment

Great three minute KTBY news segment on this Alaska trip

Recently I posted about my tour of Alaska this week, and boy, is the local community taking to the e-patient message!

Tuesday morning’s event was a breakfast meeting with the Commonwealth North policy forum. Local TV station KTBY sent reporter Caroline Flinn, who put together a pretty spectacular spot-on three-minute segment about the event, and tying it to the upcoming free public event Friday night.

For regular readers of this blog there’s nothing new here, except that this is a chance to see and hear some faces and voices of members of the movement, for instance Deb Kiley N.P., PhD, the organizer and co-ringleader of this whole trip along with Kathe Bouche and others in attendance. Watch for the cancer patient who took matters into his own hands after the docs said all they could do for his cancer was palliative care.

Did I mention that I love seeing this movement spread and take root everywhere??

Filed Under: Events Leave a Comment

September 6, 2015 By e-Patient Dave Leave a Comment

Writings and upcoming events – September

Open a medical record spigot imageContinuing this monthly series: here’s this month’s update on travels, new bookings, and writings.

Access to our families’ health records:
The time for action is coming 

The best in healthcare of course depends on access to all useful information, but HHS has reported to Congress that certain parties are “knowingly interfering” with the flow of families’ health records. Two posts:

  • Take action: We need a Federal policy change – perhaps even a law – so I wrote a call to action: Open a Big DaM Spigot – Data About Me! As the post says, “All change starts with people asking.”
    • See the post for some simple immediate actions.
    • Talk about it with friends, too – it’s getting to be “Paul Revere” time. Don’t wait til it’s your family member who’s in a crisis.
  • Over on Medium, I commented on a post by entrepreneur Steve Kiernan about this issue, saying:
    “Who out there wants to present an argument why families should be kept apart from their people’s health data? … Is there any ethical or moral argument for no spigots?”

New bookings:

[Read more…]

Filed Under: Business of Patient Engagement, Digests, Events, public speaking Tagged With: #gmdd, epatient, patient engagement Leave a Comment

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