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February 9, 2016 By e-Patient Dave Leave a Comment

A MOOC about social media in healthcare: opportunities & challenges

FutureLearn Social Media in Healthcare course screen captureThis post is about a specific course, the concept behind its technology, and what it means for the future of learning. For people who know about MOOCs this will be old news; for people who don’t, I hope this will be enlightening. It’s a big change.

For years I’ve heard about MOOCs – Massive Open Online Courses. As Wikipedia says, “…an online course aimed at unlimited participation and open access via the web.” I first wrote about the idea three weeks ago, in Reusable building blocks: a speech by video Q&A, but I’d never touched a MOOC, until recent months when I got involved with one.

It’s a free course (that’s the “open” part) that ended last month, and will start again in two weeks: Social Media in Healthcare. Specifics:
[Read more…]

Filed Under: e-patient resources, Innovation, Patient-centered tech Leave a Comment

January 5, 2016 By e-Patient Dave 3 Comments

Careful and kind care, part 2: Slides & video from Maine Quality Counts

This blog post is formatted using a new method I’ve never tried before, with slides and video side by side. The video didn’t capture the slide images, but you should be able to watch the video and click the slides forward when it seems like a good time.

Email subscribers, if you can’t see the video or the slides, click the headline to come see them online.


This series of posts to start 2016 is motivated by a desire to help healthcare achieve its potential. I believe that’s not possible unless we’re clear about what the potential is and clear about the challenges and obstacles.

Before moving to additional subjects, today I want to go one step deeper on Dr. Victor Montori’s concept of care that is “careful and kind.” (See Saturday’s post, if you missed it.) I have three reasons to go deeper before moving on:
[Read more…]

Filed Under: Innovation, Patient-centered thinking 3 Comments

January 4, 2016 By e-Patient Dave 1 Comment

The arriving future of tech in health(care): Lucien Engelen on LinkedIn

@Reshape's Twitter avatar
Radboud @REshape’s Twitter avatar

This is going to be a fascinating year, with a mix of social and technological change. On Saturday I started the year with The future of caring: careful, kind, “minimally disruptive.” Today I’ll flip to a completely separate channel: how technology is changing what’s possible.

Lucien Engelen head shotLucien Engelen, about whom I’ve often written, is the manically productive visionary at Radboud UMC, the Dutch medical center that sponsored my TED Talk in 2011. In particular, he’s head of their REshape Innovation Center … it’s fitting that @REshape’s Twitter avatar is a kid with a spyglass looking to the far horizon … far, but visible.

A post you should read:

Lucien’s just written a post on LinkedIn with his vision of what’s on the horizon and what is changing, now, already. It’s a short post but it’s a dense learning experience, with dozens of relevant links and a half hour of embedded YouTubes. Lucien’s view of the horizon is (a) different from most observers’, and (b) firmly grounded in what REshape is already doing, so this is not a distant pontificator’s view, it’s from the trenches, feet on the ground. With spyglass.
[Read more…]

Filed Under: disruption, Health data, Innovation, Patient-centered tech 1 Comment

January 2, 2016 By e-Patient Dave 7 Comments

A declaration of the future of caring: careful, kind, “minimally disruptive”

KER "Treatment That Fits" diagram
The basic idea of minimally disruptive medicine (from minimallydisruptivemedicine.org)

To start 2016, a vision.

In 450 events in 14 countries, I’ve heard a lot of thoughts about healthcare: its challenges, its possibilities, why change is hard, and who should do what to make things better. Easily one of the most inspiring voices I’ve heard is Victor Montori at the Mayo Clinic’s “KER Unit” (Knowledge and Encounter Research Unit). Here are two resources to briefly introduce you to his work; another will come later this week.

One of his fundamental principles is what he calls “minimally disruptive medicine.” While so many articles in magazines and journals complain about patient “compliance” (i.e. doing what the doctor dictated),  the KER people are nearly obsessed by questions like “Will this work in the patient’s life??” and “Wait – is this what the patient really wants?” A great quick overview is on their home page.

In an email this morning Victor said:
[Read more…]

Filed Under: Innovation, Patient-centered thinking 7 Comments

December 4, 2015 By e-Patient Dave Leave a Comment

“Let patients help reinvent radiology” (my first Periscoped speech)

Tuesday night in Chicago I gave a 28 minute talk for Philips customers at the huge (56,000 people) radiology conference, RSNA. The leading-edge social media guy at Philips, Noah Harpster (@PhilipsLiveFrom), broadcast it live using the free Periscope live-streaming app (owned by Twitter), and boom, here’s the archive. Unpolished, raw, live. Free.  (Email subscribers, if you can’t see the videos below, click here to view the post online.)

This is the first time I’ve spoken to radiologists. This talk has very little about my cancer story, and a lot about the impact on professionals of two things:

  • When assets digitize, things change fast
  • Information makes new things possible

I also pulled out some props – including a 3D printout I had done locally of my lungs (my bronchi and metastases). I told you that when things digitize, new stuff becomes possible.

[Read more…]

Filed Under: Events, Health data, Innovation, patient engagement, public speaking Leave a Comment

November 2, 2015 By e-Patient Dave 11 Comments

A patient to be inducted into the Healthcare Internet Hall of Fame

HIHOF website badge
Click to visit this year’s inductee page

As an activist for the patient movement – a social change movement – I look for and often cite signs of real change in the establishment, documenting that it’s increasingly accepting patient voices as a real part of the future of medicine. Examples:

  • 2011: TEDx Maastricht was the first TED conference to prominently feature patients as its speakers, produced by Radboud University Medical Center (UMC) in the Netherlands

[Read more…]

Filed Under: Innovation, Leadership, public speaking, Social media 11 Comments

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